Leah just celebrated her 2nd birthday on December 8. We had a great day. In lieu of gifts this year, we asked for donations for CDKL5 research. We received $600. It was wonderful to see every one's generosity. The money will be sent to doctors in Australia that are focusing primarily on CDKL5 research. We know it will help. And we would like to thank all who contributed again.

As for Leah, she is doing pretty good. We have taken her off one of her anti-epileptic medications and she has become much more aware and her cognition has improved. She is getting a little stronger and she really seems to want to do more than she can right now. Her seizures, unfortunately, have not gone away but they have reduced some and she bounces back from them a lot quicker than she used to.

We are looking forward to Christmas and vacation. We hope everyone has a wonderful holiday!